Utrecht Health Project
The Utrecht Health project (UHP) is an ongoing center prospective cohort study taking place in Leidsche Rijn (www.ncbi.nlm.nih.gov/pubmed/15921047). Leidsche Rijn is a newly developed residential area west of the city of Utrecht, the Netherlands and by 2023 over 80,000 new inhabitants are expected to have found their homes in this area. UHP started in 2000 and over 40,000 individuals registered at one of the 5 Leidsche Rijn Julius Health Centers.
Of these 40,000 patients we collect routine health care data which is obtained from the GP registry. For this data collection no informed consent is needed. More in-depth information is collected for the patients who participate in UHP. At this moment we enrolled over 10,000 patients.
In short, all new inhabitants are invited by their general practitioner to participate in UHP. Informed consent is obtained (see ethics and privacy rules). At baseline an individual health profile (IHP) is made by dedicated research nurses.
The IHP is the starting point for the UHP research database as well as for the primary care electronic medical records. Follow-up data are collected through continuous linkage with the computerized medical files recorded by the general practitioners. UHP staff in each practice takes care of quality management of registration as well as data handling.